PCOS, Low Milk Supply & Meds update
The more I learn about this issue with PCOS and low supply, the more it seems there are a lot of folks out there with it. And yet not a ton of info out there about it, either. I've gotten a few questions from folks in the form of emails and comments lately, so I thought I'd post a few more things about what I'm doing and how its all working.
What did/does your pumping schedule look like?
After day 4, when Emma was dehydrated, losing lots of weight and my milk was only just coming in (slowly!), I started pumping about 8 times a day with a hospital grade double pump (while also taking fenugreek and blessed thistle capsules). I tried to pump right after feedings (which took about 40 minutes, usually, and were every 2 hours or less) for about 10-15 minutes (I later found I get another letdown if I go longer). Pumping hurt like hell (it doesn't now) and I would get somewhere between a few drops and a quarter of an ounce, total. I was never really religious about pumping the 8-12 times they recommend because she was on the breast constantly, as well, and it just seemed impossible with all the cleaning of the parts and regular baby care. After awhile, I went down to 4 times a day, but was getting a bit more each time. I soon stopped pumping and taking herbs altogether since she was gaining well. We also quit supplementing. Oops.
After that she did not gain well, though she didn't lose weight, either. But she was still at birth weight at 7 weeks or so, which wasn't good. She was starting to get fussy and seemed hungry again, a lot of the time. I started pumping again, only 6 times a day, and started the herbs again. This time, I was getting a bit more, usually about an ounce to an ounce and a half total, after feedings. Definitely a lot more than the first weeks, but still not a ton.
Now, I rarely pump, but probably should. I still get about an ounce and a half after feedings, sometimes two ounces. I get about three let-downs per session, which is a lot more than I did those first weeks. If I pump with full breasts, after she feeds from a bottle, I can sometimes get close to 3 ounces. Supposedly, a baby is "more efficient" than the pump so hopefully she is getting more than what I can pump, most times.
What does your supplementing look like?
Those first two weeks we offered her 2 ounces in a bottle after offering the breast, every other feeding or so (she was nursing a TON, however, like an hour at a time, 10-12x a day). When we started up again at 8 weeks, we would offer 3 ounces, every other feeding. She didn't always take it all. Once she started gaining well again, I stopped offering it quite as much, and only do it when I can tell she's still hungry, which is about 3 times a day. She is getting about 6-9 ounces a day of formula now at 15 weeks old, sometimes in a supplementary nursing system because she does start to prefer the bottle after awhile, but sometimes a bottle anyway, because its easier, and someone other than me can do it. I have absolutely no idea how much breastmilk she is getting, but she must be getting more breastmilk than formula.
What ever happened with the Metformin? Did you start taking it?
No, I did not. I did get an acknowledgment from my RE that I "fall into the gray area" of PCOS, and while I do not have a full blown case, I do have a lot of the symptoms which could qualify as a mild case. That is the closest to an explanation/diagnosis we've ever had for all our infertility struggles! Since the RE doesn't work with postpartum women, she suggested I go to my OB. My OB was not comfortable prescribing Metformin since its such an experimental thing to use it while breastfeeding and for increasing milk supply. Since I have never actually been on it previously, I decided not to push the issue this time, but I will think seriously about it if I we have trouble conceiving again, or if I do get pregnant, since it supposedly helps with breast tissue growth and development during pregnancy.
Where did you get your prescription for Reglan and Domperidone? Have you noticed much of a difference using them? Between the two?
I got my prescription for Reglan from my OB. She would not give me one for Domperidone, and the nurse who I had to go through seemed slightly ignorant about the details of it, saying that the local pharmacy I had found that would give it to me (with a prescription) was "breaking the law" (in fact, compounding pharmacies in the US do not have to follow FDA guidelines, so its not illegal for them). I ended up getting the Dom online from New Zealand, with no prescription necessary, after much research and a discussion with my lactation consultant.
In terms of the two, I do think both meds increased my supply, but how much I can't tell. It wasn't like I woke up one day engorged and overflowing, thats for sure! I have seen a slight increase in my pumping quantities, but the biggest sign is that Emma is fussing on the breast less, and growing the way that she is (quite a bit!) with the only the amount of supplementing that we are doing now. As for differences between the two, I haven't noticed any. I have been lucky to not have not noticed side effects with either. I prefer Domperidone because it is safer in terms of it getting into my breastmilk and because of the huge risk of depression thats common with Reglan.
What are you doing now? How are things going?
First off, we are finally past all of the horrible pain and problems with latch, and totally off the nipple shields. Finally!!! It just slowly got better and better around 10 weeks or so. Egads, that was a long time, though! As mentioned above, we are still supplementing with formula. I have accepted that this will probably continue at least until she starts solids. I am now taking Domperidone, Fenugreek and blessed thistle. I just ordered some of this from Motherlove Herbals, and after reading some of the testimonials, am excited to give it a try. Goat's Rue supposedly has some effects similar to Metformin. I'm also doing a lot of research into foods that help increase milk supply and have a review coming on a good book I've found on that. I've also officially joined the La Leche League, too, so I suppose I now count as a crazy lactivist. Geesh. As if you didn't see that coming....
Any more questions? Keep them coming! To all you out there who are in the midst of dealing with low supply issues, I wish you the very best. I know how challenging, frustrating, and heartbreaking it can be, especially in the early days when you are dealing with learning how to breastfeed and take care of a newborn, as well! There are so many things you can try, though, and I think they can really be worth it. And if they don't, it really will be okay. I feel really good about how things are going, after slowly working my way through some tough emotions. One thing I have discovered is that, at least for me, there is no silver bullet to make my low supply issues go away. I know I've been lucky, too, in being able to give my baby as much breastmilk as I do. And while I look forward to trying some new things as we go along, I'm now to the point where I won't be crushed if they don't work. We have a great thing going over here now, and Emma is doing marvelously, which is the most important thing.